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Spina Bifida Birth Story | What is Spina Bifida? | Myelomeningocele (Birth Defect)

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Justin and Alicia

Spina Bifida Birth Story | What is Spina Bifida? | Myelomeningocele (Birth Defect)
In this video we discuss finding out our baby has Spina Bifida, what is Spina Bifida, Myeloneingocele, Hydrocephalus, what is a Chiari II Malformation, fetal surgery for Spina Bifida, bilateral clubbed feet, needing a shunt, and other challenges from the baby birth defect, Spina Bifida.

This is our birth story about finding out our son has a birth defect called Spina Bifida. Isaiah is 2 years old now, and despite being diagnosed with Spina Bifida Myelomeningocele, Hydrocephalus, Bilateral Clubbed Feet, and a Chiari II Malformation, he has proven the doctors wrong time and time again! I know this is a heavy topic, but we think Spina Bifida Awareness is so important!

We share our perspective as parents of a child with special needs who is defying the odds. We hope to be an encouragement for other families who may have gotten a tough diagnosis, and to show that Spina Bifida is not as terrifying as it was the day we found out about it.

Please check out some of our other videos (specially our last video, Isaiah's 2nd Birthday [link below]), to see how well he is doing now! We hope that by seeing his face, his laughter, and the joy he brings to our lives it will be clear how much more than a diagnosis our child is!


►Isaiah's 2nd Birthday!!! [Construction Themed Party!]
   • Isaiah's 2nd Birthday!!! [CONSTRUCTIO...  

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►Social Media
Instagram:   / justinalicia4  
Twitter: @JustinAlicia4
Facebook: JustinAlicia4

►BUSINESS INQUIRIES :
[email protected]

►Music in this video:
Sunspots by Jeremy Blake

►Please note we do not own any of the sound effects or background music used in this video. All rights belong to their respected owners.

#birthstory #spinabifida #justinandalicia #myeloneningocele #fetalsurgery #hydrocephalus #chiariIImalformation

posted by satram1