In this cancer vlog, Amanda shares how she was diagnosed with two rare cancers. She was first diagnosed with a metastatic cancer of an unknown primary source. Her first symptom was a large lump in her left groin lymph node. Five years later she was diagnosed with extra ovarian primary peritoneal carcinoma.

She started feeling fullness/pressure in her pelvis and scans eventually revealed a grapefruitsized mass in her pelvis, with part of it being a solid tumor. After surgery to remove the mass, the pathology revealed her diagnosis as extra ovarian primary peritoneal carcinoma, which is a rare gynecologic cancer.

Amanda and her team settled on chemotherapy and the immunotherapy, KEYTRUDA. Despite being in full remission, Amanda will do another year of KEYTRUDA.

#cancerstories #cancerpatient #cancersurvivor #patientstories #thepatientstory #CUP #EOPPC #chemotherapy #radiation #rarecancer #lynchsyndrome #keytruda #immunotherapy

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[Video Chapters]
00:00 Introducrtion
00:14 My family history of cancer
01:26 They found a large polyp in my colon
04:02 I was genetically tested and tested positive for Lynch syndrome
04:25 I found a lump in my groin
07:07 Finding out I had cancer
08:10 The official diagnosis of metastatic cancer of an unknown primary source
08:21 Undergoing testing and scans
09:28 Surgery and radiation
10:22 My latest cancer diagnosis
10:51 I felt this pressure in my pelvis
11:54 They found a grapefruit size mass in my pelvis
14:15 My diagnosis: Extraovarian primary peritoneal carcinoma
15:54 Deciding to do chemotherapy and immunotherapy (KEYTRUDA)
17:06 I had no idea what to expect with chemotherapy
18:00 My side effects of chemotherapy
19:12 Claritin worked for me!
20:36 I made a cancer registry because people wanted to help
21:23 I am in full remission now, but I am continuing immunotherapy (KEYTRUDA)
22:06 My side effects of immunotherapy (KEYTRUDA)
22:49 How the process of KEYTRUDA works
23:46 KEYTRUDA makes me really tired
25:08 Take advantage of the resources at the hospital!
25:40 My BIGGEST advice

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The interview has only been edited for clarity. The interview has only been edited for clarity.

Pelvis Pain led to my RARE, Gynecologic Cancer Amanda | The Patient Story
   • Pelvis Pain led to my RARE, Gynecolog...