It's that time of year again! EDS & HSD awareness month comes around quick! I'm back for my 5th annual series of Ehlers Danlos Syndrome & Hypermobility Spectrum Disorder Awareness Month videos with my dazzle of zebras from across the world. This year we have 27 zebras with 4 different types of EDS and HSD from 8 different countries sharing their experiences of what it's like to live with these rarely understood conditions on a daily basis.

In this video we are sharing some of our top tips, tricks and hacks for living with HSD, hEDS, cEDS & vEDS. Having shared some of my eds hacks on my instagram in my #hacksforspoonies series I thought I should ask my fellow zebras what their favourite hacks and best tips. I really hope you find some of these ideas helpful.

Products similar to those featured in the video are below, if there are any questions or something is missing please drop me a comment:
Ayesha & Jenni's Knee Pillow: https://amzn.to/3tKMMsO
Jenni's hairdryer stand: https://amzn.to/2QdaeBp
Georgia's Tape: https://amzn.to/3tLa95n
Emma's Heat & Ice Packs: https://amzn.to/3hicHW7
Amber's Phone holder: https://amzn.to/3eDCOFd
Jill's Ring Splints: https://www.ringsplints.com/
Alexis' Speech to text software: https://amzn.to/3eHJaDu (there is also one built into word which is pretty good)
If you'd like more advice or have questions on using mobility aids with EDS check out my mobility aids videos:    • Mobility Aids for Chronic Pain & Fati...  
For many of the things included in this video & more plus USA links visit my chronic illness survival kit page: https://chronicallyjenni.com/chronic...



I am fundraising for ‪@TheEhlersDanlosSociety‬ throughout May please head to   / chronicallyjenni   to donate

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Huge Thanks to Everyone who was involved in this video:

Adriana, North California, USA,18, hEDS, IG: @adrianaedswarrior

Alexis, Alberta, Canada, 20 , hEDS, She/They, IG: @therarewanderer & @ggalexis12 Blog: https://therarewanderer.travel.blog/

Alyssa Maryland, USA, hEDS, IG: @spoonfullygraceful

Amber, Gloucester, UK, 18, HSD, They/Them, IG: @_prisma_art_

Amy Mckee, Yorkshire, UK, 22, HSD, She/her, IG: @voldycat7 YT:    / @voldycat  

Ayesha, Brighton, 33, hEDS, She/her, IG: @ayeshashasha777 YT: ‪@AyeshaShaSha‬

Bradley, Victoria, Australia, 29, vEDS, he/him, IG: @veds_zebra

Caroline, Essex, UK, 35, hEDS, IG: @lilcaz10

Catie, Pennsylvania, USA, 25, hEDS, She/her, IG: @lifeasazebra & @sunflower.catie

Clara, Texas, USA, 21, hEDS, IG: @clara_and_arlo

Eleanor, Scotland, 22, hEDS

Eliza, London, UK, 24, hEDS, They/them, IG: @disabled_eliza

Emma, Kent, UK, 27, hEDS, She/her, IG:@ehoughton24601

Georgia, Cardiff, 22, heds, she/her

Jasper, Newcastle, UK, 26, hEDS, He/him Twitter: @queercanthear

Jeannie Di Bon, London, UK, hEDS IG: @jeannie_di

Jenni, Essex, UK, 25, hEDS, She/her, @chronicallyjenni

Jenny, Hampshire. UK, 32, hEDS, IG: @jennycole1998 YT: ‪@JennyCole1988‬ Blog: http://jaffacat.co.uk/

Jill, The Netherlands, 27, hEDS IG: @jillhubersmooren

Kate, Northumberland, UK, 26, hEDS, IG: @katestanforth

Katya, London, UK, 26, hEDS, IG: @positivelychronictravels

Luca, Ferrara, Italy, 35, cEDS, he/him, IG: @tre8bre FB:@tre8bre.1985 YT: ‪@tre8bre‬

Marisol, Mexico City, Mexico, 28, hEDS, She/her, IG:@solprni

Rachel, Essex, UK, 25, hEDS, IG: @racheleanneblog

Robin , Vancover, Canada, 29, hEDS, IG: @robinhahnsopran YT:    / @robinhahnsopran  

Simon, Devon, UK, 42, hEDS & cEDS, He/him, IG: @the_bodyboarding_eds_pilot

Special Thanks to my amazing boyfriend Ian for helping with editing!

You can support my content by:
Buying me a virtual Coffee at https://www.buymeacoffee.com/chronicj...
You can also get a membership for extra Chronically Jenni content

Taking a free trial of audible audiobookshttps://www.amazon.co.uk/AudibleMemb...

Heading to my Amazon Store & purchasing from my POTS & EDS survival kits
https://www.amazon.co.uk/shop/chronic...